Please check out this timely post by my friend Stephanie Kilgore! She is helping spread the news about the wonderful organizations that educate and help those with rare diseases.
This coming Tue, Feb 28 is Rare Disease Awareness Day. A disease is considered rare when it effects fewer than 200,000 people in the USA. That is not many people at all when you consider the massive amount of people living here.To check out much more that is happening for this very special day you can go to: http://www.rarediseaseday.org/
I just happen to be one of those individuals with a rare disease. It is called Friedreich’s. Ataxia. Approximately 1 in 50,000 people in the US get this rare disease, yay me! A genetic progressive neurological disorder that affects balance, coordination, and fine motor skills. I will not give you all the details just go to http://www.curefa.org. To be completely honest not a huge fan of the word disease, but this day started in 2008 in England. I do not have any say so in changing the name, so I…
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